Archive for Disabilities

What a Wonderful Courtyard!

Hi guys,

Creative Living has two locations and I happen to live at our first location on Perry St.  The compound is somewhat enclosed and most of the apartments overlook the courtyard.

We have a beautiful water fountain donated by the family of former resident, Daniel  

Close, may he rest in peace.

We also have a community grill and a large picnic table that, as you can see, had seen better days. Fun little fact I’ve recently learned, this picnic table was an eagle scout project aimed to be accessible for wheelchairs.

 

 

So, having nothing to do but job search I found myself a summer project. I spent 5 days scraping the paint and sanding the wood, 1 day of staining and 1 day of applying the polyurethane.

 What do you guys think of the end result? 

 

I’d like to send out a big thank you to Debbie Holloway for not only buying me a paint scraper but also keeping me company and motivated as I worked.  Thank you to our resident dancing queen, Kristin and her aid Justin for lending me a hand. Thank you to our Executive Director Marilyn Frank and R.A. Manager Dave Pratt for purchasing most of the supplies as well as allowing me to tackle this project.

It was a lot of fun!

Until next time,

Be safe,

Marly S.

Posted in: Disabilities

Leave a Comment (0) →

Meet Lora

Hi guys,

This week we are featuring one of the brightest residents Creative Living has to offer.

Meet Lora.

On February 24th 1993, Lora was in a head-on collision where she suffered a traumatic closed head injury involving a twisted brain stem plus, “a broken nose, facial laceration, broken left wrist, broken ribs, punctured lungs, tore a hole in my small intestine, and broke my left leg. I was in a coma for 73 days”, she states.

Succinctly, life was completely altered for Lora because as she states, “I went from pursuing a career as an equine orthopedic surgeon to working part-time as a ticket taker at Huntington Park.” She goes on to explain that she had graduated in 1989 as one of the Top Ten Seniors in the entire Ohio State University undergraduate class. 

After waking from a 73 days long coma Lora had to learn EVERYTHING anew, including learning to walk. Though the absolute worst aspect she states is, “not being able to do things nearly as well as before-both physically and on the cognitive level”. Dealing with the dichotomy of what we know we are capable of and what society tells us we can and cannot do is a frustrating one. The stigma of living within a deviant body is something all creative living residents face but Lora asks our readers and the general public, to “not underestimate our ability to think and be productive members of society”. 

Today, it is pretty common for students to attend college and work full time. Yet how common is it for you to hear about someone such as Lora? Oh, did I mention that Lora returned to school after her BRAIN injury and obtained two more degrees while simultaneously navigating her new life style? I mean, WOW…

What I find most beautiful about Lora’s story is how she navigates her day-to-day utilizing crutches and an automatic wheelchair. It took Lora six years of physical therapy to learn to walk again. While on crutches, she moves slower but is able to navigate around better, she can drive her car with very little modifications, she can walk up stairs as well as walk on and off curbs. While on crutches Lora can walk from point A to point B and because her hands are busy assisting her to walk. However, utilizing her wheelchair enables her to travel father, to carry things on her lap and to preserve her strength throughout the day. Each mode of mobility has positive and negative aspects and the choice depends on where she is going and what she will be doing upon arrival.

It takes a lot of discipline and forethought to navigate between crutches and a wheelchair. Lora made a commitment to herself to constantly push her physical limits and after 20+ years of hard earned mobility her body has suffered. “I have to undergo rotator cuff surgery in three weeks so I will definitely be in my wheelchair”, she states. Her right arm will be in a sling and for that reason, Michael Stewart, a neighbor and friend switched the joystick on her wheelchair from the right armrest to the left. A switch, that has brought her (and many of us witnesses) immense laughter. So far she has driven herself in circles, into curbs, the wall by the recycling bins, and into the poor sliding door at Creative Living II that had been knocked off its hinges ☺

Lora moved into Creative Living II in 1994 and has been a beloved resident ever since. Whether on crutches or wheelchair the smile is always there. She is incredibly intelligent with a lighthearted sense of humor that is infectious. She is a bit nervous of the upcoming surgery, especially as she attempts to obtain home health aid assistance (a heartache in and of its own as most residents would attest). 

Never the less, she remains positive and thankful for not only her family, friends, and neighbors but the 24/7 resident assistant program provided be Creative Living.

The RA program is essential for the residents and in Lora’s case it is helpful when she needs things carried. Lora would also like to send a big shout out to Raheem, the off duty RA that walked her, Joyce and myself home after Friday night poker. Soon her right arm will be on a sling, placing her in an even more physically compromised position but thankfully the RA’s are always willing to help Creative Living residents and that provides a peace of mind not found anywhere else.

Lets all wish Lora a speedy recovery and wish her the best on all things to come!

Good luck Lora!

Until next time, be safe!

Marly S. 

Posted in: Disabilities

Leave a Comment (0) →

My Name is Marly…

Hi everyone!

My name is Marly, but I also go by Mar, or MarMar, so just pick your favorite!

I am a 28 year-old, Lebanese/American woman just trying to navigate through life the best way I know how.  In 2007, while returning from a road trip my friend fell asleep on the wheel. We ended up hitting the rails on both sides of the road before we eventually hit a soft spot we then started flipping several times before hitting a tree and coming to a stop. Since I was asleep, I have very little memories from that night. I remember flirting with the paramedic pulling me out the car. I remember arguing with the ER nurse for cutting my new bra. I remember crying for my friend Julie and my dog Danika. Once alert, the doctors informed me that I had sustained a T10 and T12 spinal cord injury and that I would NEVER walk again.

I’d like to be blunt with you for a moment. A spinal cord injury is a devastating one. It is a COMPLETE lifestyle change regardless of the injury level. As you can imagine there are many thoughts that go through a person’s mind upon hearing that. There’s denial, anger and emotional pain all of which compounded by the immense physical pain. I have yet to meet a newly disabled individual that did not initially believe their life was over and I was no different. Coming from a different culture, it was particularly hard to hear it coming from loved ones as well.

If there is one thing I would like to project to my readers about myself, it is that I find laughter and amusement in just about any situation and eventually I started to find it within my disability. Physical therapy was a combination of hard work and lots of laughter, but I am now at a point where I can walk short distances with a walker and ankle braces.

It’s now been 8 years since my injury and my mobility issues, for the most part, no longer faze me. Thanks to Creative Living, I have lived independently for three years now and I LOVE it. I also attended The Ohio State University and graduated with honors with a B.A. in Modern Standard Arabic and a minor in Women’s Gender and Sexuality Studies. I hope to one day utilize my degree to bring awareness and consciousness to the Lebanese culture regarding the disabled life. I am fueled by the knowledge that I can and will accomplish my goals while wheelchair bound and with the biggest smile to boot.

Marly and Adam

What is your definition of disability?

Merriam-Webster defines disability as, “a condition (such as an illness or an injury) that damages or limits a person’s physical or mental abilities”.  However, to those of us that are disabled, the definition is not only individual but also very personal. For many of us, being disabled is a state of mind as much as it is a mental or bodily condition. The abled and the disabled alike have limits but it is what we choose to do with those limits that define us.

Through this Creative Living blog page, we will talk openly about what it means to be disabled. Not only to bring awareness and consciousness but to also challenge your definition of “normal”. In the coming weeks, I will be introducing you to some of the strongest individuals. Creative Living residents transcend what is perceived to be their physical limitations by simply being who they are and knowing that, that is enough. 

Be safe,

Love,

Marly 

Posted in: Disabilities

Leave a Comment (6) →